Upon analysis, the physician flatly and coldly advised that I “Study Braille as a result of you can be blind or useless earlier than you flip 27.” I bear in mind my retort as if it weren’t practically 44 years in the past: “You aren’t God and you do not get to decide on once I die or how I die.” The physician rapidly wrote my first prescription for prednisone, a steroid used to deal with illnesses related to irritation. The prescription was for 80 milligrams per day, with 5 refills. He by no means defined to me that I’d acquire an enormous quantity of weight, that taking it might promote osteopetrosis and different issues over time, or that someday, it might not even work and I’d in all probability die with no substitute drug, which in 1978, was non-existent.
As he despatched me on my approach, ignoring the ache in my eyes, which felt like somebody was hammering homebuilding nails into them, I felt tears rolling down my face. They burned my chubby cheeks as I walked the three miles again to my condominium, making an attempt to see via the cotton eye patches that I used to be utilizing to guard my eyes from the daylight.
Over time, three issues modified: the illness progressed, infecting my optic nerves and mind; the prednisone broken my bones and agility; and I turned a disabled lady effectively learn on my illness, remedies and medical specialists. But, till I turned 39, one factor was fixed: I used to be uninsurable.
And in the course of the 14 years between analysis and my graduate college fellowship, which included healthcare insurance coverage, I used to be compelled to be a thief. I stole prescription pads and realized how one can write them accurately. I stole my medicine from the pharmacies with an order, seize and run sequence. I went to emergency rooms for care and gave fictitious names simply to get my medicine when the one prescription pad I stole was on its final web page, in hopes that I might steal one other. Once I turned 40, the surgical procedures started and I thanked God I used to be insured; however I used to be indignant that having been uninsured for many years, my physique was ravaged by doubtlessly lethal issues that had by no means been identified — and nobody cared, besides me.
It was then that I turned a medical advocate for myself, and in a number of years, a medical advocate for others both asking for or open to assist. That is what led me, an individual who was uncertain if I used to be even going to vote in any respect — as a result of I used to be pissed off with the systemic racism, police brutality and the current stream of movies of racist Whites accosting Blacks of their each day lives — to the city corridor in Philadelphia on Tuesday.
I wished to ask President Donald Trump if he would shield the lives of thousands and thousands of individuals like me, who’ve severe, lethal pre-existing situations and be our advocate for our proper to reside.
He addressed me in a approach that made me really feel like an inconvenience, moderately than his compelled constituent (I say compelled as a result of I did not vote for him in 2016). Encountering my query, one which thousands and thousands of different Individuals have, gave the impression to be a circumstance he needed to undergo via to advertise his reelection.
Reasonably than seeing a human being asking for his help and assist, maybe all he noticed was a fats Black lady — a metaphoric rock in his shoe that, if not for saving face, he would have begrudgingly eliminated and resentfully thrown into the Schuylkill River on his approach again to Air Pressure One.
Once I walked into the Nationwide Structure Middle on Tuesday night time, I wasn’t positive if I’d vote in any respect. Now, my vote goes to Joe Biden. For Individuals, notably these with no pre-existing medical situation who’re nonetheless uncertain in the event that they need to take part this November, I ask that you simply take into account this: Sooner or later you or a liked one could discover yourselves in the identical state of affairs as me — combating on your life.
And after 4 years of Donald Trump trying to dismantle the ACA, making guarantees he won’t ever preserve, and never devising a nationwide plan to guarantee thousands and thousands of Individuals with pre-existing situations will have the ability to afford protection, I counsel you vote for the Joe Biden and Kamala Harris ticket.